FEATURE LENGTH DOCUMENTARY | 2021

This film chronicles the life of Norwegian author Thorvald Steen, who suffers from facioscapulohumeral muscular dystrophy; a rare waste disorder that gradually and irreversibly paralyzes his body. The disease, however, has never stopped Thorvald. He is still an active public debater, freedom of speech advocate, author and cultural communicator, although his ski jumping days are over. Through Thorvald's own wonderful sense of humor and storytelling abilities, the film paints an intimate and poetic picture of an unusual life and the man who's still very much enjoying it. The well-known Norwegian photographer Per Maning has followed Thorvald with his camera for 25 years and documented Thorvald's development. The result is a unique and rare portrait of the meaning of life.

Featuring: Thorvald Steen and Finn Skårderud

Director | Per Maning
Producers | Jørgen Lorentzen and Nefise Özkal Lorentzen
Executive producer | Petter Skavlan
Cinematography | Per Maning and Anders Hoft
Editor | Anders Hoft
Composer | Nils Petter Molvær
Sound Design | Andreu Jacob